I am currently working on ideas for fundraising, etc... as mentioned in my earlier post. In the mean time, however, if anyone out there has anyone they know personally affected by dystonia or just wants to donate to a really great cause, the organization I personally trust is BEAT DYSTONIA.
Rogers Hartmann is the founder and has a great board of doctors, etc... who all work together to decide where the money should be spent; science!
Please check it out at www.cftexas.org/beatdystonia
This is a non-profit organization and Rogers Hartmann is a dystonia patient.